About Us
We are a Germand-based self-help group for postorgasmic-illness-syndrome (POIS) founded in Berlin in May 2024.
As those affected, we are aware of the enormous amount of suffering that comes with POIS. And how lonely and alone you can feel with the disease.
We share the experience of not being understood by doctors or relatives, of “wandering around” in the healthcare system and desperately searching for answers and solutions as lone fighters. All of this is very exhausting and extremely frustrating in addition to the actual illness.
It took us many years to recognize and name the disease ourselves, as information about POIS – especially before the Internet age – was either not available at all or only with difficulty. And even today, POIS is still unknown to most medical professionals.
So each of us spent a long time alone with the disease before we found each other as a group and finally felt understood.
This positive experience gave rise to the idea of providing a platform for other sufferers to offer concrete help in dealing with POIS and to promote networking.
If you also suffer from POIS, then get in touch with us! Every single person counts.
contact@postorgasmic-illness-syndrome.com
Together against POIS!